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Rare Diseases

Rare Disease Day is an annual, awareness-raising event co-ordinated by EURORDIS at the international level and National Alliances of Patient Organisations at the national level

February 28th 2011 will mark the fourth International Rare Disease Day coordinated by EURORDIS and organised with rare disease national alliances in 25 countries. On that day hundreds of patient organisations from more than 40 countries worldwide will be organising awareness-raising activities and converging around the slogan “Rare but Equal”.

Hundreds of patient groups and their partners, coordinated by national alliances at the country level, are planning a multitude of events to draw attention to rare diseases and the millions of people who are affected by them. Awareness-raising activities are being planned across Europe, all the way to Russia, Georgia and Armenia, as well as in the US, Canada and as far as Australia, New Zealand, China and Japan!

Find out what EURORDIS is doing on Rare Diseases Day Click here

Want to get involved? Click here

Links:

  • IH – Intracranial hypertension
  • Caitlins Wish

Websites:

Rare disease Day website USA

Rare disease Day website

Facebook IH Brain Pain Team

The IH Research Foundation website

IH Brain Pain Team website

IH Awareness Video

Young Carers Video

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